Imogen’s Journey

The story of Imogen

Imogen was diagnosed with Coffin Siris Syndrome at 2 years old! She loves to swim, dance and enjoys going to school with all her friends! She is rare and fabulous and has so much to offer the world! She has 2 brothers who she adores and we can’t wait to watch her grow and celebrate all her achievements! 

 

*Find others with Coffin Siris Syndrome on RareConnect, the online platform for people affected by rare diseases