So far…

The story of Debbey

hEDS, Chiari type 1, POTS, CEBV, pernicious anemia, Osteochondritis Dissecans, Gastroparesis, MCAS, Dystonia, BBPV, piriformis syndrome & waiting to hear from the spinal tap l had yest if lve got MS

I’ve always had med issues since l was young (lm 57 now), but l never knew why?! I went thru many, many Drs telling me l had nothing wrong with me, l was just depressed… I finally began finding decent, intelligent, caring Drs who understood my symptoms & began unraveling all that’s wrong with me. I’m still a work in progress, learning more about what’s truly wrong & how best to treat me, so I can have the best life possible – til then l keep doing the best l can & am thankful for all l do have ~

 

*Find others with EDS, POTS, Familial Osteochondritis Dissecans, MCAS on RareConnect, the online platform for people affected by rare diseases