The story of Jessica

My beautiful Daughter Amera was sadly diganosed with Niemann Pick Type C in August 2020.

This is a life limiting illness which affects your ability to walk, talk, swallow, hear, it also affects your vision and Amera also suffers with leg and hand tremors.

Niemann Pick is a neurological disease, eventually she will even forget who her loved ones are.

She is such a warrior and is so so special to me, please help me raise awareness for such a awful disease.

Our blog is fb Mimi & NPC

 

*Find others with Niemann Pick type C on RareConnect, the online platform for people affected by rare diseases