The story of Samantha
My rainbow baby was born after 7 miscarriages. She was born with small blisters on her arms….which escalated so they were all over her body.
After months of misdiagnosis we finally had a biopsy and found out it is Incontinentia Pigmenti, which is a x linked disease.
This can effect lots of things, such as hair, eyes, teeth,nails,skin.
Luckily her skin cleared up, and she now just has some pigment swirls on her legs. She has had laser on her eyes for bleeding vessels and wears glasses for ambloypia and nystagmus, she has a few cone shaped teeth.
But you know what? I wouldn’t change her for a thing!! Her condition comes with its problems, but its ones that yu have to wait and see when it if they will appear! She is a clever 5 year old, and acts years older than her time! IP will not define who she is!