The story of SALMI
About Rayyan
He was born on the 28th of January 2016 and delivered normally with no complications. At that moment he brought us joy and laughter, a cute little boy as normal as any other baby.
When he was six months old, several test were done when the doctor noticed Rayyan had a Frontal bossing head, bushy eyebrows and claws-like fingers, and stomach bloating. He always got the flu, colds, lung infections, vomiting and diarrhea.
After several tests, the doctor proved that Rayyan had mucopolysaccharidosis type ii (mpsii) when he was 1year 3 months old. As parents we were distraught.
Enzyme Replacement Therapy (ERT) is the best way to save him and slow the disease process in his body. It is sponsored by government and he undergoes treatment at the hospital every week. As much as we hope that Rayyan will recover, he will fight for his life till the end.