Rare syndrome day

The story of Jill

My son that passed away October 2018 had what is called christianson syndrome is it rare enough that I could not find it on the list provided it is physical and mental development and lots of seizures  but do this all the health problems u would never know he had a rare syndrome  the small head and the eyes would be the only thing that would give it away and I am honored to be his mommy even though he couldn’t talk and say mommy I knew he loved me and everyone around himÂ