Living with Mowat-Wilson syndrome

The story of Kori

When my daughter was diagnosed in March of 2018, I had no idea what Mowat-Wilson syndrome was at all, but all of Khloe’s doctors gave us a lot of good websites to go and read up about it. Life with MWS isn’t always easy. But on September 29 2017 the life of myself and my children changed when I almost lost my daughter due to 2 grand maul seizures, she then was taking to childrens hospital the same one where all of our doctors are. To be diagnosed with epilepsy.