Moyamoya survivor

The story of Chuck

Mid august of 2017 had a work accident, from there had a stroke several tia before the stroke, finally had 3 strokes two days after the accident, since I was born I’ve been told my vessels on my brain have been shrinking, I am soon to be 39 and I am trying to recover from the stroke doing rehab, doctors denied me help in emergency department claiming I was under influence if alcohol at the time which time us very important I could have avoided the stroke, the day I was transferred to vgh, it was discovered I had moyamoya, I could have been diagnosed sooner had I been transferred asap. The disease is so rare that not many are aware of it and it’s symptoms where I live

 

*Find others with Moyamoya on RareConnect, the online platform for people affected by rare diseases.

 

Â