The story of Fundacja
Adam and Lea – amazing siblings who share not only big brotherly Love but also fatal genetic disease. They both suffer from genetic metablic disorder, MPS 3 also referenced as Sanfilippo syndrome. This disease will allow them to develop only until age 3-4, afterwards taking away from them all the skill they acquired and eventually also their life. Children with Sanfilippo die before reaching aduldhood and the average life expectancy is around 15 years. We want to change their future by raising funds and supporting research relevatn for Sanfilippo globally. Care for rare!
Connect with other people living with MPS 3 on RareConnect.org