The story of Tom
Our daughter Jenna, now 19, is a survivor of Childhood Cancer and is legally blind. She is one of only about 400 people in the entire world who has this particular and exceedingly rare genetic disorder. It is called WAGR syndrome. Go to www.wagr.org for more information.
Jenna is the most determined person I have ever known. Just in the last couple of years she has endured five very delicate eye surgeries and another unrelated surgery. At present, she has high pressures in both of her eyes and may be facing more surgeries. But that has not stopped her from graduating from high school, attending college, and earning her black belt in karate along the way!