The story of Irene
Our daughter was born on the 12th of Agust 2015. She was our first baby. She was born 2700 kg and 53 sm. She was weak and her legs and arms almost didn’t move. We were at home for a week and a half or so. And then we took her to a hospital because she didn’t gain weight. After being at the hospital for 3 weeks we went to Kyiv and she was taken a molecular genetic test. She was diagnosed with SMA type 1. It’s a rare genetic disease. Her muscles were so weak.
We were told that there was no treatment all over the world.
My heart was broken. I was crying day and night. And then I decided to fight, to save her life. And I was fighting as long as I could. But I failed.
Our sweet little Angel passed away when she was only 3 months and 8 days old.
Sweety, Mommy loves you SO much. You’re always in my heart!