The story of Margaret
My son passed away October 2013, he took unwell on the 13th October 2013 and 3 weeks later we lost him. The hospital didn’t know what was wrong with him, 5 weeks after my son passed away we got told that he had a condition called Duncans disease, apparently he had been born with it. What us as a family don’t understand is that it is a male condition, they only live to the age of around 10 , my son was 2 weeks off his 25th birthday. Hospital didn’t tell us anything about this condition we had to find out for ourselves. Going through hell, a parent is supposed to help her/ his child, we couldn’t do anything to help our son apart from wiping his brow, talking to him, he was put onto a ventilator, we don’t know if he could hear us. There is a cure for this condition and its bone marrow, he would still be here if the hospital would have known the symptoms of this.by the time they knew our son had passed away.That is the killing part of it, he could have been saved. They need to do more research into this.