About SynGAP Research Fund
Our organization will promote Rare Disease Day through our social media channels — Facebook and Instagram. We will encourage our patient parents to also share via their personal pages, and will create a Facebook overlay for profile pictures with the Rare Disease Day and SynGAP Research Fund logos both included. I am also flying up to DC on 2/26/20 with Invitae to share our diagnosis journey, in favor of a new bill seeking expanded genetic testing.