About Nadir Hastalıklar Ağı (Rare Diseases Network of Turkey)
Rare Diseases Network; by rare patients and their relatives in Turkey and draw attention to rare, unknown life on Earth; it is a network established to produce rational, practical and permanent solutions to problems and to ensure the realization of these solutions.
As Rare Diseases Network, our aim is to share our solutions with health authorities; to form the basis of legal legislation, to increase treatment opportunities, to provide benefits to newly diagnosed individuals and to increase the quality of life and time of individuals with rare diseases.