About UAE Genetic Diseases Association
Rare Diseases Society U.A.E is an initiative by UAE Genetic Diseases Association.
Objectives:
•Collaborate with rare disease patients, caregivers and other health care advocates
•Raise important awareness for rare diseases as part of Rare Disease Society
•Offer recognition and support to patients and their families , promote awareness of the specific challenges and needs of those living with rare diseases.
•Create evidence based studies and offer data support to health care which help in better diagnosis.
UAE Genetic Diseases Association (UAEGDA) and Sheikh Zayed Research Centre were founded in 2004 as a dedication to the memory of His Highness Sheikh Zayed bin Sultan Al Nahyan, founding father of the U.A.E. We renew our pledge to serve the community in 2018, the “Year of Zayed.”