About Cystinosis Research Network
Leading up to Rare Disease Day on February 28th, we invite each person impacted by any rare disease to share their #RareIn60. Create a – 60-second video – 60-second photo collage -or- – 60-word summary of what you’d like others to know about your rare disease Your message can be geared towards friends and family, colleagues, students, health care professionals, etc. The sky’s is the limit! To participate: 1. Create your #RareIn60 2. Post online the week of February 22nd (or send to [email protected]) 3. Post using #RareIn60 4. Let us know you are joining the campaign! Don’t forget to tag us (Cystinosis Research Network) We hope you can take part in this campaign and look forward to learning how we can partner on behalf of the rare disease community in the future.