About Klippel-Feil Syndrome Freedom
Klippel-Feil Syndrome Freedom empowers and unites patients and their families through peer support, education, research, and advocacy, for a lifetime of improved health care.
We have activities and ways to get involved for Rare Disease Day 2019, click here! Participate in the #ShowYourKFStripes Challenge! Or click here, for our full list of ideas.
Klippel-Feil syndrome is an often misunderstaood rare, congenital, degenerative, musculoskeletal condition, that affects the cervical spine. Additionally, KFS can be painful, and may affect many organs and systems in the body.
Thank you!
Klippel-Feil Syndrome Freedom