About Rare Diseases India – Foundation for Research on Rare Diseases and Disorders
Rare Disease Day awareness program for school students, public and civil services examination students. Participants will be educated with diseases in general and rare diseases particular. Topics to be discussed include : How to identify suspected rare disease subjects, how to approach them, how to inform local researchers. Wilson’s diasease – copper metabolism disorder – will be part of the discussion. The aim is to make students and public compassionate and informed about rare disease patients.