The story of Tanae
As a young child born into a world at two weeks old, I was under a special light my early entrance signalled something not right. I kept excelling each week and thriving at my own pace the doctors and nurses couldn’t believe what was happening right in there faces.
As years went by and new things started to begin I found myself delayed in most of other children’s life could do really well. It then came to key parents attention that I had been suffering global developmental delay. I was always struggling with school work and teachers couldn’t help me either cause there was a lack of help in the classroom or they figure the easy way out was to fail me.
Years went by and then it suddenly hit 2023 October the 6th marked the day I finally got my Hao fountain diagnosis , the missing puzzle peice to my identity . I stand strong among 250 other patients globally and advocate for us all to learn more about it.
Happy Rare Disease day we are different but the world needs to learn how to treat us better.
My favourite song comes from the musical the greatest showman “This is me”.