About LGDA
The LGDA Patient Organisation is dedicated to supporting individuals affected by Complex Lymphatic Anomalies. We connect patients and their families with crucial resources, peer support, and expert guidance to navigate their health journeys. Over the past decade, through initiatives like the Million Dollar Bike Ride and the Young Investigators Award, the LGDA has proudly funded over 1 million dollars in groundbreaking research. This support has led to the identification of two targeted drug therapies for treating complex lymphatic anomalies, advancing treatments and improving outcomes for those affected by complex lymphatic anomalies.
Our extensive research network brings together clinicians and researchers, fostering collaboration and innovation. We host monthly seminars where medical professionals can share their latest findings, enhancing knowledge and care strategies across the field. Our dedicated support team is always available to answer questions, connect you with our LGDA Support Group, or pair you with someone who shares your diagnosis and understands your challenges.
Through our extensive network of medical professionals specializing in vascular and lymphatic anomalies, the LGDA effectively connects patients and families with expert medical care and guidance.
The LGDA Patient Organisation is a hub where patients and families can seek advice, share experiences, and learn from one another. We will be active on social media in the lead up to and one Rare Disease Day.