The story of Leda
My journey with neuromyelitis optica (NMO) began in 2018 when I faced my first attack. In an instant, my life changed dramatically as I experienced reduced strength on the left side of my body and impaired vision. The impact was profound; I not only faced physical challenges but also lost my job, leaving behind a career I had dedicated myself to and loved dearly.
As I navigated the emotional and physical effects of my diagnosis, resilience and determination became my guiding forces. I refused to let this condition define me. I sought to educate myself and empower others, enrolling in a program with the European Patients’ Academy on Therapeutic Innovation (EUPATI). This education equipped me with the knowledge and skills to advocate for those living with rare diseases.
Today, I channel my experiences into advocacy, working tirelessly to raise awareness about NMO and other rare diseases. My mission is to support others on similar journeys, ensuring that they know they are not alone and that their voices deserve to be heard. Though my path has been challenging, it has also been a source of strength, purpose, and community.