The story of Arun
 I live with small fiber polyneuropathy since early childhood which is caused by CMT2DD a rare genetic disorder with only 7 reported cases of this particular mutation. It took me 20 years to get diagnosed properly. To get a diagnosis I had to go through a nerve biopsy which itself gave me a rare disease known as chronic regional pain syndrome. I am living with these diseases and managing them with the biologics. Given that, it took me so many years and I had to manage all this on my own I started support group to help people struggling like me.