Description
This event is a panel discussion about rare diseases, which will take place on Friday, February 28th from 11:00 AM to 1:00 PM.
It is free, open to the general public, and does not require registration.
We will have the participation of geneticists and members of the “Asociación Condroplasia Uruguay” (ACONUR), who will share testimonies as family members of patients with achondroplasia.
The event will be held in person and broadcast live online.