Description
As the Rare Diseases Federation of Turkey, we organised the ‘Year of Rare Diseases in the Family; We are together for Healthy Generations’ Panel on 27 February 2025 to improve the quality of life of individuals living with rare diseases, to raise awareness in the society and for national policy.
Specialists in the field of health,
Public and private sector representatives,
Policymakers,
Members of the media,
In this panel, which patients and their relatives/caregivers will attend, essential issues related to the diagnosis, treatment, communication, cooperation and social perception of rare diseases will be discussed.
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