About Nerve Connection Foundation Limited
Nerve Connection Foundation was established in 2021 to address a need for a significant uptick in funding for research into devastating, fatal neurodegenerative diseases. Motor neuron disease, many muscular dystrophies, spinal muscular atrophy, Pompe disease, progressive supranuclear palsy and many other rare neurological conditions have lots in common – the onset of muscle weakness, leading to severe disability and often death. And a significant lack of research funding.​
Nerve Connection Foundation is not a physical research organisation. Rather, it has access to specialists in the field with the expertise to know where targeted funding is best placed, making it a charity trusted to deliver donor’s funding where it’s most needed. We work closely with research institutions and patient facing bodies to fund the transition from research to next step clinical trials.​
The Foundation is governed board of experienced directors, supported by an advisory board with a wide skillset. It has deductible gift recipient status and is compliant across all areas.​
Our ambassador has limb girdle muscular dystrophy type 2i and has been asked by a USA charity cure lmgd2i to be its international ambassador on Rare Disease Day. We would like to capitalise on this in Australia and promote the Day, possibly via lights on a public building and a social media campaign (which will be pursued if our application is successful). The plan will be to build on the event year by year.
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