29 Februarywas Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

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300M

people with rare diseases

600+

events worldwide

106

countries involved

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Gideon, The Little Warrior

I could lie and say Gideon started his life as an easy baby, but I will not. Gideon started his life with a BANG. He… Continue reading Gideon, The Little Warrior

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Sachin: Resilience in the face of Duchenne Muscular Dystrophy

My name is Sachin and I’m a 37-year-old guy who has a rare genetic disease known as Duchenne muscular dystrophy (DMD), which primarily affects males,… Continue reading Sachin: Resilience in the face of Duchenne Muscular Dystrophy

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Seeking a Cure for Simon

When my wife Edith was pregnant with Simon, our first child, we were filled with joy and excitement for what was to come. That joy… Continue reading Seeking a Cure for Simon

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Thousands of events
in over 100countries

Every year, thousands of events are
organised across the world.

In the news

On February 8 at 2PM (CET) the Rare Disease Day team is hosting a webinar on “Driving Awareness by amplifying young voices in the rare… Continue reading Learn to engage your young community

With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start… Continue reading Join the Countdown: Rare Disease Day 2024 Starts Now

In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts… Continue reading Webinar: How to Raise Awareness Among Healthcare Providers

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